Relatives of people with spinal cord injury: a qualitative study of caregivers' metamorphosis.

Laura Juguera RodriguezManuel Pardo RiosCésar Leal-CostaMatilde Castillo HermosoNuria Perez AlonsoJosé Luís Díaz Agea

Published in: Spinal cord (2018)

People with SCI and their primary caregivers experienced changes in every sphere of their lives. Their most important needs were psychological support, social support, economic resources, information, training throughout the process of suffering, and the creation of informal groups of mutual aid.

Keyphrases

social support
depressive symptoms
palliative care
spinal cord injury
sleep quality
health information
virtual reality
social media