Living with multimorbidity: A qualitative exploration of shared experiences of patients, family caregivers, and healthcare professionals in managing symptoms in the United States.
Anna PeelerKatie E NelsonVidisha AgrawallaSarah BadawiRobyn MooreDavid LiLara StreetDavid N HagerCheryl Dennison HimmelfarbPatricia M DavidsonBinu KoiralaPublished in: Journal of advanced nursing (2024)
This study has been designed and implemented with patient and public involvement throughout the process, including community advisory board engagement in the project proposal phase and interview guide development, and member checking in the data collection and analysis phases. The method we chose, experience-based co-design, emphasizes the importance of engaging members of a community to act as experts in their own life challenges. In the coming phases of the study, the public will be involved in developing and testing a new intervention, informed by these qualitative interviews and co-design events, to support symptom management for people with multimorbidity.
Keyphrases
- mental health
- healthcare
- end stage renal disease
- chronic kidney disease
- randomized controlled trial
- ejection fraction
- systematic review
- depressive symptoms
- case report
- physical activity
- prognostic factors
- peritoneal dialysis
- sleep quality
- patient reported
- data analysis
- patient reported outcomes
- artificial intelligence