Newborn screening for haemophilia: The views of families and adults living with haemophilia in the UK.
Felicity K BoardmanRachel HalePhilip J YoungPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)
Haemophilia emerged from this analysis as a condition that the vast majority of participants considered a "liveable" disability and one best suited to newborn screening programmes that could improve support to affected families rather than reduce the birth rate of affected children.