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Newborn screening for haemophilia: The views of families and adults living with haemophilia in the UK.

Felicity K BoardmanRachel HalePhilip J Young
Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)
Haemophilia emerged from this analysis as a condition that the vast majority of participants considered a "liveable" disability and one best suited to newborn screening programmes that could improve support to affected families rather than reduce the birth rate of affected children.
Keyphrases
  • young adults
  • multiple sclerosis
  • cross sectional
  • gestational age
  • pregnancy outcomes