Palliative Care in Movement Disorders: an Evolving Field.
Zachary A MacchiChristopher G TarolliBenzi M KlugerPublished in: Current neurology and neuroscience reports (2021)
PC needs are common in persons living with movement disorders and their families from the time of diagnosis through end-of-life and contribute to quality of life. Early advance care planning is preferred by patients, impacts outcomes and is promoted by PC frameworks. Systematic assessment of non-motor symptoms, psychosocial needs and spiritual/existential distress may address gaps in current models of care. Several complementary and emerging models of PC may be utilized to meet the needs of this population. A PC approach may identify and improve important patient and caregiver-centered outcomes. As a relatively new application of PC, there is a need for research to adapt, develop and implement approaches to meet the unique needs of this population.
Keyphrases
- palliative care
- end stage renal disease
- advanced cancer
- advance care planning
- healthcare
- newly diagnosed
- chronic kidney disease
- ejection fraction
- mental health
- peritoneal dialysis
- case report
- metabolic syndrome
- quality improvement
- physical activity
- adipose tissue
- type diabetes
- pain management
- sleep quality
- patient reported
- weight loss
- clinical evaluation