Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals.
Laura ObiciRosaline CallaghanJoanne AblettCatilena BibiloniTeofila BueserIsabel ConceiçãoFrancesca DongiglioAgnès FarrugiaFabian KnebelThirusha LaneLars-Ove LarssonAgnès MorierVincent NicholasTeresa CoelhoPublished in: BMJ open (2023)
Further consideration is needed on how to evolve multidisciplinary services (supported by allied HCPs and PAGs) to address the complex needs of those affected by this disease.