Quality of life of persons living with HIV and congruence with surrogate decision-makers.
Katherine B CurtinYao I ChengJichuan WangRachel K ScottLeah SquiresDebra A BenatorMaureen E Lyonnull nullPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2018)
QOL discrepancies are said to arise from healthy surrogates overestimating the effects of chronic illness. In this novel assessment, many surrogates had a shared HIV diagnosis, without increased agreement. These findings highlight the challenge of accurately assessing patient QOL by surrogates, even when there is a shared HIV diagnosis. Improved communication is needed between patients and surrogates about the patients' representation of illness. National Clinical Trial Number: NCT01775436.
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