Themes for evaluating the quality of initiatives to engage patients and family caregivers in decision-making in healthcare systems: a scoping review.
Clayon B HamiltonMaryam DehnadiM Elizabeth SnowNancy ClarkMichelle LuiJanet McLeanHussein MamdaniAllison L KooijmanVikram BubberTammy Hoefernull nullLinda C LiPublished in: BMJ open (2021)
The 18 themes and their descriptions provide a foundation for identifying constructs and selecting measures to evaluate the quality of initiatives for engaging patients and family caregivers in healthcare system decision-making within the organisation and system domains. The themes can be used to investigate the mechanisms through which relevant initiatives are effective and investigate their effectiveness.