Consent and Inclusion of People Living with Dementia (PLWD) in Research: Establishing a Canadian Agenda for Inclusive Rights-Based Practices.
Amanda GrenierDeborah O'ConnorKrista JamesDaphne ImahoriDaniella MinchopoulosNicole VelevLaura Tamblyn-WattsJim MannPublished in: Canadian journal on aging = La revue canadienne du vieillissement (2024)
It suggests conceptual, legal, and policy issues that need to be addressed and invites Canadian researchers to re-envision research practices and to advocate for law and policy reform that enables dementia research to align and respect the rights and personhood of PLWD.