Parent experience of caring for neonates with seizures.
Monica LemmonHannah GlassRenee A ShellhaasMary Carol BarksBria BaileyKatie GrantLisa GrossbauerKamil PawlowskiCourtney J WusthoffTaeun ChangJanet S SoulCatherine J ChuCameron ThomasShavonne L MasseyNicholas S AbendElizabeth E RogersLinda S Francknull nullPublished in: Archives of disease in childhood. Fetal and neonatal edition (2020)
Parents of neonates with seizures face challenges as they adapt to and find meaning in their role as a parent of a child with medical needs. Future interventions should target facilitating parent involvement in clinical and developmental care, improving team consensus and reducing the burden associated with prognostic uncertainty.