Association of patient, treatment and disease characteristics with patient-reported outcomes: Results of the ECHO Registry.

Charles R M Hay Michael P Makris Midori ShimaAzusa NagaoVíctor Jiménez-YusteMark W Skinner Craig M KesslerSylvia von Mackensen

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)

ECHO captured a variety of disease characteristics, treatment patterns, PROs and clinical outcomes obtained in real-world practice with ≤1 year's follow-up. Older age, poorer joint health and >BMI adversely affected multiple aspects of participant well-being.

Keyphrases

patient reported outcomes
magnetic resonance
primary care
public health
body mass index
magnetic resonance imaging
contrast enhanced
combination therapy
diffusion weighted
quality improvement