Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life.
Barbora SilarovaSharon M NelisRosalie M AshworthClive BallardMarta BieńkiewiczCatherine HendersonAlexandra HillmanJohn V HindleJulian C HughesRuth A LamontRachael LitherlandIan R JonesRoy W JonesMartin KnappPiers KottingAnthony MartyrFiona E MatthewsRobin G MorrisCatherine QuinnJemma ReganJennifer M RustedEleanor Ann van den HeuvelChristina R VictorYu-Tzu WuLinda ClarePublished in: BMC public health (2018)
IDEAL-2 will provide evidence about the key indicators of, and factors associated with, living well over the course of dementia and how these differ for particular subgroups. It will tell us which combinations of services and support are most beneficial and cost-effective. Moreover, the IDEAL-2 study will gather evidence from under-researched groups of people with dementia, who are likely to have their own distinct perceptions of living well.