Protocol for an observational cohort study identifying factors predicting accurately end of life in dementia with Lewy bodies and promoting quality end-of-life experiences: the PACE-DLB study.
Melissa J ArmstrongHenry L PaulsonSusan M MaixnerJulie A FieldsAngela M LundeBradley F BoeveCarol ManningJames E GalvinAngela S TaylorZhigang LiPublished in: BMJ open (2021)
This study was approved by the University of Florida institutional review board (IRB202001438) and is listed on clinicaltrials.gov (NCT04829656). Data sharing follows National Institutes of Health policies. Study results will be disseminated via traditional scientific strategies (conferences, publications) and through collaborating with the Lewy Body Dementia Association, National Institute on Aging and other partnerships.