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Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement).

Catherine J EvansE YorganciP LewisJ KoffmanK StoneI TunnardB WeeW BernalM HotopfI J Higginsonnull null
Published in: BMC medicine (2020)
The MORECare_C statement details 20 solutions to recruit ALC nearing the EoL in research. The statement provides much needed guidance to enrol individuals with serious illness in research. Key is involving family members early and designing study procedures to accommodate variable and changeable levels of capacity. The statement demonstrates the ethical imperative and processes of recruiting adults across the capacity spectrum in varying populations and settings.
Keyphrases
  • systematic review
  • mental health
  • meta analyses
  • randomized controlled trial