Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico-administrative claims and patient-reported data: The chronic pain treatment cohort.
Anais LacasseVéronique GagnonHermine Lore Nguena NguefackMélissa GosselinM Gabrielle PagéLucie BlaisLine GuénettePublished in: Pharmacoepidemiology and drug safety (2021)
Although approximately half of the participants refused data linkage, our approach allowed for the implementation of a data platform that contains a diverse and substantial sample. This investigation has also led to the formulation of recommendations for web-based data linkage, including placing items designed to assess willingness to share personal identifiers at the end of the questionnaire, adding explanatory videos, and using a mixed-mode questionnaire.
Keyphrases
- chronic pain
- patient reported
- electronic health record
- genome wide
- healthcare
- primary care
- cross sectional
- newly diagnosed
- ejection fraction
- end stage renal disease
- drug delivery
- data analysis
- health insurance
- dna methylation
- quality improvement
- high throughput
- peritoneal dialysis
- clinical practice
- combination therapy