The attitude of patients with progressive ataxias towards clinical trials.
Gilbert Thomas-BlackAndrada DumitrascuHector Garcia-MorenoJulie VallortigaraJulie GreenfieldBarry HuntSusan WaltherMackenzie WellsDavid R LynchHugh MontgomeryPaola GiuntiPublished in: Orphanet journal of rare diseases (2022)
Knowledge of motivations for and barriers to trial participation as well as the acceptability of investigations, time commitments and routes of drug administration should inform better, more patient focused trial design. This in turn may improve recruitment and retention of participants to future trials.