eRegistries: governance for electronic maternal and child health registries.
Sonja L MyhreJane KayeLee A BygraveMargunn AanestadButhaina GhanemPatricia MechaelJ Frederik FrøenPublished in: BMC pregnancy and childbirth (2016)
Addressing legal requirements and ensuring that privacy and data security of women's and children's health information is protected is an ethical responsibility that must not be ignored or postponed, particularly where the need is greatest. Not only are the potential harm and unintended consequences of inaction serious for individuals, but they could impact public trust in health registries leading to decreased participation and compromised data integrity.