Including the voice of paediatric patients: Cocreation of an engagement game.
Lorynn TeelaLieke E VerhagenMariken P GruppenMaria Jose SantanaMartha A GrootenhuisLotte HavermanPublished in: Health expectations : an international journal of public participation in health care and health policy (2022)
Paediatric patients, clinicians, researchers, youth panel of Fonds NutsOhra and patient associations (Patient Alliance for Rare and Genetic Diseases, Dutch Childhood Cancer Organization) were involved in all phases of the development of the patient engagement game-from writing the project plan to the final version of the game.
Keyphrases
- end stage renal disease
- newly diagnosed
- ejection fraction
- case report
- chronic kidney disease
- emergency department
- intensive care unit
- peritoneal dialysis
- prognostic factors
- young adults
- social media
- mental health
- childhood cancer
- palliative care
- gene expression
- patient reported outcomes
- quality improvement
- copy number