Parental experience of parent-mediated intervention for children with ASD: A systematic review and qualitative evidence synthesis.
Lucie JurekKathy LeadbitterBruno FalissardCyrille ColinSandrine TouzetMarie-Maude GeoffrayPublished in: Autism : the international journal of research and practice (2022)
The effectiveness of parent-mediated interventions in the field of autism spectrum disorder is well documented but information on the experience of parents involved in parent-mediated interventions is limited.This study is the first synthesis of evidence concerning the experience of parents involved in parent-mediated interventions. It synthesizes the voice of 345 parents across the world into four general themes: barriers to implementation and logistical issues, feeling overwhelmed and stressed (a need for support), facilitators of implementation, and empowerment in the parent and improvement in the child.The findings of our study provide evidence that parent-mediated interventions should be adapted to the needs of each family. Specific care and support should be offered to parents in addition to parent-mediated interventions. Our study, however, highlights which outcomes are important to parents and should be considered in future studies.
Keyphrases
- autism spectrum disorder
- physical activity
- healthcare
- randomized controlled trial
- primary care
- quality improvement
- type diabetes
- adipose tissue
- mental health
- attention deficit hyperactivity disorder
- metabolic syndrome
- young adults
- skeletal muscle
- intellectual disability
- current status
- glycemic control
- insulin resistance
- working memory
- case control