Patient and public involvement in preclinical and medical research: Evaluation of an established programme in a Discovery-Based Medical Research Institute.
Robyn A SmithJudith SlocombeJo CockwillKathy MinasGeorge KiossoglouKatya GrayWilliam LawrenceMichelle IddlesClare L ScottLorraine Ann O'ReillyPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
Four consumer partners from the DBMRI Consumer Advisory Panel were actively engaged in developing this programme evaluation. Specifically, these consumer partners co-developed and pilot-tested surveys and interview guides, reviewed and commented on project data analysis and reporting and also contributed as co-authors by editing the manuscript.
Keyphrases
- data analysis
- healthcare
- health information
- study protocol
- crispr cas
- small molecule
- hiv testing
- adverse drug
- case report
- quality improvement
- randomized controlled trial
- mental health
- high throughput
- social media
- clinical trial
- emergency department
- cell therapy
- mesenchymal stem cells
- hiv infected
- human immunodeficiency virus