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Genetics and Justice, Non-Ideal Theory and the Role of Patents: The Case of CRISPR-Cas9.

Oliver Feeney
Published in: European journal of health law (2022)
There are ongoing concerns of social justice regarding inequalities in the distribution of access to potential genome editing technologies. Working within non-ideal theory, Colin Farrelly advances a justification for the use of patents to speed up the arrival of safe and effective interventions for all, including the socially disadvantaged. This paper argues that such success is less assured when one considers the actual functioning of patents and the practical implications of the patent system in the context of biotechnological innovations. I suggest that non-ideal theoretical approaches risk reverting back to a form of ideal theory if they simply refer to such real-world constraints - e.g. patents - but do not critically assess and fully examine how such constraints manifest themselves in practice. I highlight some considerations that would be important in order to develop and foster a more robust non-ideal approach to justice in biotechnological developments.
Keyphrases
  • crispr cas
  • genome editing
  • healthcare
  • mental illness
  • primary care
  • physical activity
  • mental health
  • climate change