Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey.
Caroline BrallClaudia BerlinMarcel ZwahlenEffy VayenaMatthias EggerKelly E OrmondPublished in: BMJ open (2022)
Insight into public preference can enable Swiss biobanks and research institutions to create management and governance strategies that match the expectations and preferences of potential participants. Models allowing participants to choose how to interact with the process, while more complex, may increase individual willingness to provide data to biobanks.