Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study.

Mwidimi NdosiBegonya Alcacer-PitarchYannick AllanoreFrancesco Del GaldoMarc FrerixSílvia García-DíazRoger HesselstrandChristine KendallMarco Matucci-CerinicUlf Mueller-LadnerGunnel SandqvistVicenç Torrente-SegarraTim SchmeiserMatylda SierakowskaJustyna SierakowskaStanslaw SierakowskiAnthony Redmond

Published in: Annals of the rheumatic diseases (2018)

The individual SScQoL items have translated well into five languages and overall, the scale maintained its construct validity, working well as a five-subscale questionnaire. Measures of quality of life in SSc can be directly compared across five countries (France, Poland Spain, Sweden and UK). Data from Italy are also comparable with the other five countries although require an adjustment.

Keyphrases

systemic sclerosis
interstitial lung disease
cross sectional
physical activity
big data
risk factors
psychometric properties
patient reported