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Protocol for the Flinders Kidney Health Registry: patient outcomes of kidney cancers and nephrectomies.

Jordan Y Z LiSarah BoddaAlex JayGanessan KichenadasseMichael ChongJonathan M GleadleMichael O'Callaghan
Published in: BMC urology (2022)
The Registry will report a summary of patient characteristics including indication for treatment, clinical risk profiles, surgical and oncological outcomes, the proportion of patients who progress to CKD and end stage kidney disease, quality of life post treatment as well as other relevant outcomes for all patients who have undergone nephrectomy for any indication, ablation or surveillance for SRMs. The registry will record the follow-up practice after nephrectomy and patient on active surveillance, which will help to develop and enhance a best practice protocol. The collected prospective data will provide a platform for ongoing patient-orientated research and improve patient-centred healthcare delivery.
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