Living with a brain tumour leads to an inevitable adjustment to maintain day-to-day life. The findings suggest there are a number of adjustments that patients make to maintain some independence. Many people valued the support they received from support groups, while others felt that the support they received was inadequate. The mandatory loss of a driving licence for people in the UK was the most concerning. Its removal led to a loss of confidence and made them immediately dependent on others for travel. While support was provided, there was an apparent omission in the provision of psychological support. Oncology and palliative care nurses are in key positions to explore psychological concerns and offer tailored support.
Keyphrases
- palliative care
- end stage renal disease
- mental health
- chronic kidney disease
- newly diagnosed
- ejection fraction
- multiple sclerosis
- magnetic resonance
- magnetic resonance imaging
- prognostic factors
- cross sectional
- computed tomography
- sleep quality
- blood brain barrier
- functional connectivity
- brain injury
- cerebral ischemia