Barriers to prophylactic treatment among patients with haemophilia A in Shandong Province, China: a qualitative study.
Ziyu LiuJunchao FengYunhai FangYan ChengShunPing LiPublished in: Orphanet journal of rare diseases (2023)
The findings presented in this descriptive qualitative study offer a unique view of Chinese patients with haemophilia A and their barriers to prophylactic treatment. Our findings not only provide an in-depth understanding of barriers to prophylactic treatment encountered by Chinese patients with haemophilia A but also address the urgent need to strengthen primary care, provide adequate financial support, and establish patient-centred care for these suffering patients.