Feminizing care pathways: Mixed-methods study of reproductive options, decision making, pregnancy, post-natal care and parenting amongst women with kidney disease.
Leah Mc LaughlinCaron JonesBarbara NeukirchingerRhiannon Tudor EdwardsJudith StoneHelen WilliamsDenitza WilliamsRose RapadoRhiannon PhillipsSian GriffinPublished in: Journal of advanced nursing (2023)
The original proposal for this research came from listening to the experiences of women in clinic who reported unmet needs and detailed experiences of their pregnancies (positive and negative). A patient group was involved in developing the funding application and helped to refine the objectives by sharing their experiences. Two women who are mothers living with kidney disease were co-opted as core members of the research team. We hosted an interim findings event and invited patients and wider support services (adoption, fertility, surrogacy, education and maternal chronic kidney disease clinics) from across the UK to attend. We followed the UK national standards for patient and public involvement throughout.
Keyphrases
- healthcare
- pregnancy outcomes
- quality improvement
- end stage renal disease
- chronic kidney disease
- mental health
- primary care
- palliative care
- peritoneal dialysis
- decision making
- polycystic ovary syndrome
- case report
- preterm birth
- pregnant women
- ejection fraction
- newly diagnosed
- south africa
- prognostic factors
- cross sectional
- affordable care act
- health information
- pain management
- electronic health record
- adipose tissue
- type diabetes
- birth weight