Bridging the gap: Survey highlights challenges and solutions in outreach and identification of people with inherited bleeding disorders.
Juliana HagembeAlain BaumannMaria E SantaellaThomas SanniéCatherine LambertAnne Louise CruickshankCarlos Gaitan-FitchEkawat SuwantarojCesar GarridoSalome MekhuzlaPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Multistakeholder collaboration, coupled with secured government commitment, is crucial for improving global outreach, diagnosis rates, and access to care for individuals with IBD. Customized outreach programs should consider regional contexts, financial constraints, and prioritize innovation.