The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis.
Laurence ReganNancy J PrestonFiona J R EcclesJane SimpsonPublished in: Aging & mental health (2017)
Participants' views were framed by the context of their lives and experience of their illness and these shaped their engagement with end-of-life care. Given the varying disease trajectories, care needs to be individualised and needs-based, implementing palliative care in a timely way to prevent crises and loss of autonomy.