The Challenges of Perceived Self-Management in Lupus.
Paul R FortinDeborah Da CostaCarolyn NevilleAnne-Sophie JulienElham RahmeVinita HarounWendy SingerJodie Nimigon-YoungAnna-Lisa MorrisonDavy EngChristine A PeschkenEvelyne VinetMarie HudsonDoug SmithMark MatsosJanet E PopeAnn Elaine ClarkeStephanie KeelingJuan Antonio Aviña-ZubietaMurray RochonPublished in: Arthritis care & research (2020)
Low patient activation was observed in more than one third of lupus patients indicating a large proportion of patients perceived that they are lacking in lupus self-management skills. These results highlight a modifiable gap in perceived self-management ability among patients with lupus.