A systematic review of theories, models and frameworks used for youth engagement in health research.
Sherald SanchezRachel ThorburnMarika ReaPamela KaufmanRobert SchwartzPeter SelbyMichael ChaitonPublished in: Health expectations : an international journal of public participation in health care and health policy (2024)
Youth engaged as patients in the research were not involved in planning or conducting the systematic review. However, youth researchers in their early to mid-20s led the planning, implementation and interpretation of the review. As part of subsequent work, we formed a youth advisory board to develop a youth-led knowledge mobilization intended for an audience of youth with lived experience of being engaged as patients in research.