A Web-Based Peer-Patient Navigation Program (Compassionate Online Navigation to Enhance Care Transitions) for Youth Living With Childhood-Acquired Disabilities Transitioning From Pediatric to Adult Care: Qualitative Descriptive Study.

Kristina Marie Kokorelias Tin-Suet Joan Lee Mark Theodore Bayley Emily Seto Alene Toulany Michelle L A Nelson Gina Dimitropoulos Melanie Penner Robert Simpson Sarah Elizabeth Patricia Munce

Published in: JMIR pediatrics and parenting (2024)

Web-based patient navigation programs such as CONNECT may deliver peer support that can improve the quality and experience of care for youth, and their caregivers, transitioning from pediatric to adult care through personalized support, health care monitoring, and health and social care resources. Future studies are needed to test the feasibility, acceptability, usability, use, and effectiveness of CONNECT among youth with childhood-onset disabilities.

Keyphrases

healthcare
palliative care
quality improvement
mental health
physical activity
public health
affordable care act
health information
young adults
randomized controlled trial
systematic review
pain management
childhood cancer
health insurance
chronic pain
climate change
early life
health promotion