The pervasive influence of systems of power on transition readiness for adult care in sickle cell disease: A qualitative study.

Kemar V PrussienHaley L FaustLori E CrosbyKim Smith-WhitleyLamia P BarakatLisa A Schwartz

Published in: Pediatric blood & cancer (2024)

Systems of power are prevalent with respect to transition barriers for AYA with SCD and their supports. Structural, institutional, and individual factors with potential to reduce the influence of systems of power should be further identified and targeted for intervention.

Keyphrases

sickle cell disease
randomized controlled trial
healthcare
palliative care
quality improvement
cancer therapy
pain management
health insurance
childhood cancer
affordable care act