The act of telling: South African women's narratives of HIV status disclosure to intimate partners in the HPTN 071 (PopART) HIV prevention trial.
Lario ViljoenDillon WademanGraeme HoddinottVirginia BondJanet SeeleyPeter BockSarah FidlerLindsey Reynoldsnull nullPublished in: Women's health (London, England) (2021)
We describe how these women perform HIV status disclosure (or deliberate non-disclosure) to retain, reaffirm or redefine existing social scripts with partners. Their performances reveal priorities other than those imagined by public health programmes driving HIV disclosure (or non-disclosure): establishing trust, resenting betrayal and ensuring self-preservation while simultaneously (re)constructing self-identity. None of the women engaged with the concept of treatment as prevention in their disclosure narratives, either to facilitate disclosure or to 'justify' non-disclosure. HIV prevention, in general, and treatment adherence support were rarely mentioned as a reason for disclosure. To date, there has been a missed opportunity to ease and support disclosure in health programmes by tapping into existing social scripts, impeding potential patient and public health benefits of universal HIV testing and treatment.
Keyphrases
- hiv testing
- public health
- men who have sex with men
- hiv positive
- antiretroviral therapy
- healthcare
- hiv infected
- human immunodeficiency virus
- polycystic ovary syndrome
- hepatitis c virus
- clinical trial
- randomized controlled trial
- gene expression
- risk assessment
- pregnant women
- single cell
- genome wide
- study protocol
- combination therapy
- insulin resistance
- metabolic syndrome
- weight loss
- social media