Which outcomes should be measured in hand eczema trials? Results from patient interviews and an expert survey.
Henriette RönschFrederike SchiffersRobert F OfenlochElke WeisshaarAnna-Sophie BuseAndreas HansenSwen Malte JohnGimenez-Arnau Ana MariaDavid PesquéTove AgnerLine Brok NørresletLaura LomanGeertruida L E RomeijnMarie L A SchuttelaarAdrijana Koscec BjelajacJelena MacanAndrea BauerChristian J ApfelbacherPublished in: Journal of the European Academy of Dermatology and Venereology : JEADV (2023)
'Itch' was rated high among patients with HE and professional HE experts. While patients emphasized fissures as important, experts underlined the ability to work. This investigation allowed us to define a 'Long List' of 7 candidate outcome domains with 58 sub-domains. From this list, a panel of stakeholders will select core domains during an online Delphi survey.