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Behind closed doors. A case study exploring the lived experiences of a family of a person with the behavioral variant of frontotemporal dementia.

Jeroen BruinsmaKirsten PeetoomFrans VerheyChristian BakkerMarjolein de Vugt
Published in: Dementia (London, England) (2022)
Symptoms of the behavioral variant of frontotemporal dementia have a complex and profound impact on family dynamics and change existing roles, relationships, and interaction patterns. Psychosocial support may help families by accounting for individual differences in involvement, coping, and bereavement. This may help to create a sense of mutual understanding between family members that could potentially strengthen their relationship. This may help families to deal with the difficult challenge of organizing care for a relative with frontotemporal dementia who lives at home.
Keyphrases
  • mental health
  • healthcare
  • palliative care
  • depressive symptoms
  • social support
  • quality improvement
  • intellectual disability
  • sleep quality
  • pain management
  • chronic pain