Patient satisfaction with US Hemophilia Treatment Center Care, Teams and Services: The First National Survey.
Brenda RiskeRick ShearerJudith R BakerPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2020)
Patient satisfaction with US Hemophilia Treatment Center care, multi-disciplinary teams, services and processes was consistently high, documenting the value patients place on HTCs. The successful survey administration demonstrates the capability of the Network's regional infrastructure. Access to the US HTC Network is particularly critical to ongoing health in this new era of novel and gene therapies.
Keyphrases
- patient satisfaction
- healthcare
- palliative care
- primary care
- end stage renal disease
- affordable care act
- newly diagnosed
- ejection fraction
- gene expression
- cross sectional
- genome wide
- peritoneal dialysis
- copy number
- dna methylation
- health insurance
- patient reported outcomes
- health information
- genome wide identification