User appraisal of a booklet for advance care planning in multiple sclerosis: a multicenter, qualitative Italian study.

Andrea GiordanoLudovica De PanfilisSimone VeroneseMichela BruzzoneMarta CascioliMariangela FarinottiAmbra Mara GiovannettiMaria Grazia GrassoPaola KrugerAlessandra LugaresiLeigh MansonMarta PerinEugenio PucciClaudio SolaroLuca GhirottoAlessandra Solari

Published in: Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology (2023)

Appraisal of the booklet was instrumental in improving its acceptability and understandability before using it in the ConCure-SM feasibility trial. Furthermore, our data reveal a lack of familiarity with ACP practice in the Italian context.

Keyphrases

multiple sclerosis
advance care planning
healthcare
primary care
clinical trial
study protocol
electronic health record
genome wide
phase iii
systematic review
cross sectional
single cell
white matter
artificial intelligence
open label