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Siblings of children with chronic kidney disease: A qualitative study of everyday life experiences.

Hanne AgerskovHelle C ThiessonBirthe D Pedersen
Published in: Journal of renal care (2021)
In everyday life, participants experienced that their sick sibling's illness was either in the background or came to the fore. They needed to adapt to periods of hospitalisation. They felt a need to be attentive to, take care of and have concern for the sick brother or sister. Conflicts caused feelings of loneliness; however, having knowledge about the disease provided security and meaning. Being introduced to the healthcare professionals was significant. It was important to have close relationships with friends and other adults, which gave rise to feelings of self-confidence and being supported.
Keyphrases
  • chronic kidney disease
  • healthcare
  • end stage renal disease
  • palliative care
  • young adults
  • mental health
  • quality improvement
  • intellectual disability
  • social support
  • depressive symptoms
  • health insurance