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The Effects of Systematic Lupus-Related Cognitive Impairments on Activities of Daily Living and Life Role Participation: A Qualitative Framework Study.

Michelle BarracloughAaron HoweAna SoberanisMahta KakvanVijay ChattuAli Bani-FatemiLisa L EngelMichelle VittiEmily NalderYael GoveroverMonique GignacDennisse BonillaWils NielsenNicole AndersonCarmela TartagliaBehdin NowrouziZahi Touma
Published in: ACR open rheumatology (2023)
This study provides a better understanding of the patient experience of CI in SLE, how it impacts their lives, and what coping strategies they employ. It highlights the long-term challenges those with CI in SLE undergo and provides evidence for the urgent need to implement multidisciplinary treatment options. When managing CI, it may be beneficial to evaluate and understand available psychosocial support resources to help identify and reinforce relevant adaptations to improve health-related quality of life.
Keyphrases
  • systemic lupus erythematosus
  • disease activity
  • depressive symptoms
  • physical activity
  • mental health
  • social support
  • high intensity