Barriers and challenges faced by women with congenital bleeding disorders in Europe: Results of a patient survey conducted by the European Haemophilia Consortium.

Declan NooneNaja Skouw-RasmussenMichelle Lavin Karin P M van Galen Rezan Abdul Kadir

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)

Improved education for both patients and healthcare providers is essential to improve time to diagnosis, access to treatment and psychosocial supports for WBD in Europe.

Keyphrases

healthcare
end stage renal disease
ejection fraction
newly diagnosed
prognostic factors
case report
peritoneal dialysis
mental health
cross sectional
patient reported outcomes
quality improvement
smoking cessation