Login / Signup

The Experience of Facilitating Inclusive Research Advisory Groups With Parents and People With Intellectual Disability and/or Autism Spectrum Disorder.

Andrew CashinMichelle KerstenVirginia HowieAmy PracilioJulia MorphetKen GriffinJulian N TrollorNathan J Wilson
Published in: ANS. Advances in nursing science (2023)
There is little nursing research about process issues in conducting inclusive project advisory groups of people with autism and/or intellectual disability or those who are parents/carers of this cohort. Through a descriptive qualitative design, this article aims to analyze the processes, challenges, and solutions when facilitating these groups for a nursing project in Australia. Reflexive thematic analysis was utilized to analyze field notes and meeting minutes. Results highlight the need for a defined, robust communication process between researchers and advisory groups, skilled facilitators, and careful planning of when in the life of the project the groups can contribute meaningfully. This project offers a proposed framework for the valuable contribution of lived experiences from research advisory groups.
Keyphrases
  • intellectual disability
  • autism spectrum disorder
  • quality improvement
  • attention deficit hyperactivity disorder
  • mental health
  • healthcare
  • cross sectional
  • systematic review