A multicenter paper-based and web-based system for collecting patient-reported outcome measures in patients undergoing local treatment for prostate cancer: first experiences.
Christoph KowalskiRebecca RothGünther CarlGünter FeickAlisa OesterleAndreas HinkelThomas SteinerMarko BrockBjörn KaftanRainer BorowitzNiko ZantlAxel HeidenreichAndreas NeisiusChristopher DarrChristian BolenzBurkhard BeyerJesco PfitzenmaierBernhard BrehmerJan FichtnerBjörn HabenSimone WesselmannSebastian DiengPublished in: Journal of patient-reported outcomes (2020)
The PCO study benefits from a quality improvement system first established over 10 years ago, requiring collection and harmonization of a predefined clinical dataset across centers. Nevertheless, establishing a PROM routine requires substantial effort on the part of providers and constant monitoring in order to achieve high-quality data. The findings reported here may be useful for guiding implementation in similar initiatives.