Clinical Outcome Assessments in Encephalitis.
Juliette BrennerSammy H C OlijslagersYvette S CrijnenJuna M de VriesMelissa R MandarakasMaarten J TitulaerPublished in: Neurology(R) neuroimmunology & neuroinflammation (2023)
This systematic review confirms a critical gap in clinical outcome assessments in patients with encephalitis, failing to identify a validated measuring tool for detecting neurocognitive, functional, and health status. It is therefore essential to develop and/or validate disease-specific PROMs for the population with encephalitis to capture relevant information for patient management and clinical trials about the effects of disease that are at risk of being overlooked.