Patient engagement in clinical guidelines development: input from > 1000 members of the Canadian Osteoporosis Patient Network.
Suzanne N MorinM Djekic-IvankovicL FunnellL GiangregorioI B RodriguesR RidoutS FeldmanS KimH McDonald-BlumerG KlineW E WardN SantessoW D LesliePublished in: Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA (2019)
Patients emphasized that autonomy, mobility, and quality of life are highly valued outcomes and must be integral to practice guideline development. As expected, guidance on pharmacotherapy, screening and monitoring, and fracture prevention were priorities identified to be included in osteoporosis management guidelines.