Recontacting biobank participants to collect lifestyle, behavioural and cognitive information via online questionnaires: lessons from a pilot study within FinnGen.

Rodosthenis S RodosthenousMari E K NiemiLila KallioMerja PeralaPerttu TerhoTheresa KnoppEero PunkkaEnni M MakkonenPaula NurmiJohanna MakelaPauli WihuriMarco HautalahtiCorianna MoffattPaolo MartiniLaura GermineViola A MakelaOona A KarhunenJari LahtiTero S HiekkalinnaTero JyrhamaHuei-Yi ShenHeiko RunzAarno PalotieMarkus PerolaAndrea Gannanull null

Published in: BMJ open (2022)

In summary, this pilot suggests that recontacting FinnGen participants with the goal to collect a wide range of cognitive, behavioural and lifestyle information without additional engagement results in a low participation rate, but with reliable data. We suggest that such information be collected at enrolment, if possible, rather than via post hoc recontacting.

Keyphrases

health information
physical activity
social media
metabolic syndrome
cardiovascular disease
weight loss
electronic health record
study protocol
healthcare
randomized controlled trial
type diabetes
machine learning
clinical trial
artificial intelligence