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Ethics framework for citizen science and public and patient participation in research.

Barbara C GrootTineke A Abma
Published in: BMC medical ethics (2022)
Ethical issues in citizen science often relate to power differentials, partnership, and collaboration between academics and non-academics. The ethics framework prepares researchers for the work needed in citizen science to act responsibly and offers a heuristic guide to reflect on ethics. Reflection on ethics is a pathway towards ethical citizen science, especially if researchers collaboratively reflect in partnership with non-academics who are subject to the moral issue.
Keyphrases
  • public health
  • big data
  • global health
  • decision making
  • healthcare
  • mental health
  • case report
  • emergency department
  • electronic health record