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Prospective, longitudinal, multicenter study on the provision of information regarding sudden unexpected death in epilepsy to adults with epilepsy.

Nora-Elena WadleChristina SchwabCarola SeifartFelix von PodewilsSusanne KnakeLaurent M WillemsKatja MenzlerJuliane SchulzNadine ConradiFelix RosenowAdam Strzelczyk
Published in: Epilepsia (2022)
The provision of SUDEP information has no adverse effects on overall health, HRQoL, depressive symptoms, stigma, or seizure worry among PWE, who appreciate receiving information. SUDEP information provision might improve compliance among PWE and reduce but not eliminate the increased mortality risk.
Keyphrases
  • health information
  • depressive symptoms
  • palliative care
  • healthcare
  • public health
  • social support
  • social media
  • emergency department
  • risk assessment
  • climate change