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Extended Family Outreach in Hereditary Cancer Using Web-Based Genealogy, Direct-to-Consumer Ancestry Genetics, and Social Media: Mixed Methods Process Evaluation of the ConnectMyVariant Intervention.

Annie T ChenJennifer HueySandra CoeJailanie KaganovskyEmily A MaloufHeather D EvansJill DakerElizabeth HarperOlivia FordianiEmma E LoweCaileigh McGraw OldroydAshlyn PriceKristlynn RothJulie StoddardJill N CrandellBrian H Shirts
Published in: JMIR cancer (2023)
This study demonstrated that there is an interest in extended family outreach as a mechanism to improve cascade screening for hereditary cancer prevention. Additional research to systematically evaluate the outcomes of such outreach may be challenging but is warranted.
Keyphrases
  • social media
  • papillary thyroid
  • health information
  • squamous cell
  • randomized controlled trial
  • colorectal cancer screening
  • healthcare
  • childhood cancer
  • lymph node metastasis
  • type diabetes
  • young adults