Extended Family Outreach in Hereditary Cancer Using Web-Based Genealogy, Direct-to-Consumer Ancestry Genetics, and Social Media: Mixed Methods Process Evaluation of the ConnectMyVariant Intervention.
Annie T ChenJennifer HueySandra CoeJailanie KaganovskyEmily A MaloufHeather D EvansJill DakerElizabeth HarperOlivia FordianiEmma E LoweCaileigh McGraw OldroydAshlyn PriceKristlynn RothJulie StoddardJill N CrandellBrian H ShirtsPublished in: JMIR cancer (2023)
This study demonstrated that there is an interest in extended family outreach as a mechanism to improve cascade screening for hereditary cancer prevention. Additional research to systematically evaluate the outcomes of such outreach may be challenging but is warranted.