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Assessing gastro-intestinal related quality of life in cystic fibrosis: Validation of PedsQL GI in children and their parents.

Mieke BoonIne ClaesTrudy HavermansVictoria Fornés-FerrerJoaquim Calvo-LermaInês AsseiceiraAnna BulfamanteMaría GarrigaEtna MasipSandra WoodcockSylvia WaletCeleste BarretoCarla ColomboPaula CrespoEls Van der WielJessie HulstSandra Martinez-BaronaRita NobiliLuisa PereiraMar RupertoSaioa VicenteKris De BoeckCarmen Ribes-Koninckxnull null
Published in: PloS one (2019)
PedsQL GI is a valid and applicable instrument to assess GI QOL in children with CF. Future research efforts should examine the responsiveness of the CF PedsQL GI to change in the context of clinical interventions and trials.
Keyphrases
  • cystic fibrosis
  • pseudomonas aeruginosa
  • young adults
  • lung function
  • physical activity