Functional decline in persons with haemophilia and factors associated with deterioration.
Johan BlokzijlMartijn F PistersCindy VeenhofRoger E G SchutgensMerel A TimmerPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
The majority of PWH remained stable in their perceived functional ability over mid-long term (median 3.5 years). However, about a third showed a clinical relevant decline in their functional ability.